The book presents important experiences and efforts made in Brazil over the last decades in the insertion and adaptation of people with disabilities and rare diseases to health and management systems. Edited by pediatrician Daniela Koeller Rodrigues Vieira, a researcher at the Fernandes Figueira National Institute of Women, Children and Adolescents Health (IFF/Fiocruz), the work features articles from professionals from different scientific fields and specialties such as Biology, Genetics and Speech Therapy..The texts reflect important academic and practical contributions that highlight the importance of recent inclusion in public policies for the health of people with one or more disabilities and individuals with rare conditions.
Thus, the authors address and scale key issues such as existing experiences in caring for people with disabilities and rare diseases in primary care, medical genetics and integrality in health care, tools and perceptions of professionals from primary care for approaches and for care practices.